
APEXNEURO
MOTOR NEURONE DISEASE
Our MND/ALS neurorehabilitation programme is designed to support individuals diagnosed with Motor Neurone Disease, with a particular emphasis on early intervention.
We have one of the largest client bases and most experience working with this condition in Europe.
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Our approach is suitable for:
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All variations of MND, including ALS, PLS, bulbar palsy and flail arm syndrome.
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Newly diagnosed or individuals with slow progression seeking to maintain function and strength.
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Those in early stages experiencing initial symptoms like muscle weakness, strength loss, spasticity, dexterity/fine motor changes, walking/gait changes and/or speech changes.
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Advanced MND who want to improve their mobility or ability to do daily activities improving quality of life and independence. Clients that have the ability to stand (including those who use aids) and can transfer are most suitable for the programme. If you are unsure of your suitability, please book a free consultation so we can learn more about you.
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Proven results improving:
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Walking and gait.
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Getting up and down and transferring.
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Speech and bulbar symptoms.
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Swallow and tongue movement.
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Dexterity, fine motor skills and grip.​
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Facial muscle movement including smiling, forming words, eating and drinking.
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Under-active muscles, loss of strength and lack of muscle recruitment.
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Breathing changes (we are able to work with the diaphragm to improve depth of breath and breath control, but cannot improve lung function).
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Drop foot.
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Reduced circulation.
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Pain (not a typical MND symptom, but often as a result of lack of muscle use or tightness).
HOW ARE WE DIFFERENT?
Many of our clients with MND/ALS have been told repeatedly there is ‘nothing that can be done’ and to expect only decline, with little hope offered for maintaining or regaining function.
As one of the only clinics in Europe achieving consistent results with MND/ALS, we challenge this perspective and have a very different outlook that most other practitioners. Harnessing cutting-edge rehabilitation technologies and a pioneering methodology we help clients extend independence, maintain and regain strength and movement, and achieve results that improve quality of life.
Despite achieving world-leading results, we have intentionally positioned our prices at a competitive rate which are typically less than other similar programmes in this country, and far less than programmes in the USA. We undercharge for the results we deliver. We discuss programme cost during the consultation, which we offer free of charge.
OUR APPROACH
There are very few neurorehab programmes that include services for MND/ALS clients, and even less that have the experience we have working with this condition. In contrast, we specialise in some of the ‘most complex’, under-served diagnoses, including MND and Multiple Sclerosis.
We employ a pioneering, technology-driven methodology that addresses core issues in MND/ALS - the progressive loss of motor function and the disruption of neuromuscular communication. Our main goal is functional preservation and improvement and can be applied to a variety of MND/ALS symptoms (see the full list to the left of this page).
Our leading approach is driven by the evidence that significant functional gains are possible and a methodology that has been formed through hundreds of hours working with all variants of this condition. Our outlook is fuelled by seeing clients maintain abilities, muscle and strength, and in some cases regain functions to a degree that is unparalleled in conventional MND/ALS settings.
Our methodology is redefining what's possible in MND/ALS rehabilitation, offering new hope and tangible improvements in quality of life for those living with this challenging condition. See our results and client experiences on Instagram.
HOW OUR PROGRAMME WORKS
Our MND programme begins with a comprehensive consultation, allowing us to learn more about your history, symptoms and hopes for working together, while giving you chance to ask questions and learn about our approach.
Unlike many programmes, we do not ask clients to be away from home for months at a time, for good reasons:
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Being away from home for long periods adds significant strain to the individual and family, we want to minimise stress to improve outcomes.
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Long stays are often costly, or require being hospitalised.
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We simply do not need the same duration to achieve results.
Intensive programme durations vary from 2 to 10 day intensives with intervals at home tailored to the individual. We also offer weekly sessions for local clients within 1.5hr of the clinic.
We offer a Remote Support Programme to bridge the gap between intensives and help clients maintain progress.
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As MND/ALS is a degenerative condition, you will need to consider working with us on the long term but we aim to minimise appointments to only what is necessary, and in small 'doses'. After the first intensive, as needed, clients return for subsequent (often shorter) intensives. Important: we are not treating the underlying disease. Your starting point will determine realistic outcomes and responses, results vary. We require dedication and work from the client, and will only work with clients who are willing to take responsibility for the factors needed for success outside of the sessions.
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WHAT OUR CLIENTS SAY
SEE OUR OUTSTANDING MND RESULTS HERE
"Defying the odds of MND. My husband and I visited APEX NEURO back in March, and we immediately felt at home. We travelled from Exeter to see them, so chose to do an intensive over 5 days, and aside from laughing and chatting like we were old friends, their knowledge, patience, and expertise in what they do is second to none. The work of Sarah and Rob has restored our hope and determination to fight this disease. We have continued to have improvements since his appointments. Something we didn’t think was possible. We visited with open minds and we got better results than we imagined."
"Thank you for giving me the power of knowledge. You two are defying odds in all aspects of neurodegenerative diseases, giving people hope and helping improve quality of life."
"These amazing people and what they do is so incredible. They are more than cutting edge. They think outside the box is ways that literally change lives."
"Why travel across the world for treatment? For a chance to preserve function. But I gained so much more than that. My walk has been very spastic - I lack control and my legs lock/hyper extend. [Minutes after that video was taken] I regained control and my gait drastically improved. This magical duo gave me more confidence, more hope and a plan for the future. My dear new friends, what a gift you have given me and my family."
"We can't believe the difference in our daughter and the difference this has made to her both mentally and physically. You are truly amazing people. We can't thank you enough."
"When the NHS say there is no hope for you at all, you both say yes there is. I am so grateful to have found you."
"MND progress in 10hrs. When you have been told nothing can be done just manage symptoms and see what these wonderful guys have done in just 10hrs. I was unable to walk without splints and crutch for any distance. Now I can walk around house without splints. My glute muscles were completely not working therefore unable to balance myself. The difference these muscles working again has made to me is unbelievable. I can not thank Rob and Sarah from the bottom of my heart as they are the 2 most selfless people and enjoy seeing people progressing."
